Day 76 and just four days to go. Four days! We've started a list of things to take with us, like a shirt that isn't slit down the back and has buttons for ease of dressing.
On the pain front, she's pretty much back to taking narcotics to sleep and some during the day for pain. It is not her neck like it was in the beginning, where the injury was. The pain now radiates from her back, around her shoulder blades and her arms. After a night of rest, it is better until about dark then the pain returns as bad as ever. Four more days.
Yesterday, she dropped something and bent down to pick it up. She said the room started spinning and she yelled for me. By the time I got to her, she was sitting in her chair but said she was dizzy. No idea what that was about. Probably something with the inner ear again.
This is in case anyone with a halo or supporting a halo user stumbles across this. This is how we wash her hair with a halo on. We are currently trying to decide when to wash her hair before the scan and halo removal. We've been doing that every two days since it is so exhausting for her and requires something for dizziness.
This is the chair setup we use so she can lay back with her head over the tub. Before this she was laying over the bed with her head suspended over it and pouring water from a pitcher over her. It was OK but took quite a while and I had to refill the pitcher multiple times. This takes about five minutes with her on her back. Wet, lather, rinse!
This is how we thread a towel through the back of the halo in order to keep the vest dry. It is best to use a smaller towel or an older towel that is not too thick as the extra bulk makes it difficult to not get it soaked.
This is the adapter I fashioned from a quick disconnect. It allows me to get the hot water to the faucet and then connect the hand shower head without having to wait for the water to reach a stable temperature.
On the pain front, she's pretty much back to taking narcotics to sleep and some during the day for pain. It is not her neck like it was in the beginning, where the injury was. The pain now radiates from her back, around her shoulder blades and her arms. After a night of rest, it is better until about dark then the pain returns as bad as ever. Four more days.
Yesterday, she dropped something and bent down to pick it up. She said the room started spinning and she yelled for me. By the time I got to her, she was sitting in her chair but said she was dizzy. No idea what that was about. Probably something with the inner ear again.
This is in case anyone with a halo or supporting a halo user stumbles across this. This is how we wash her hair with a halo on. We are currently trying to decide when to wash her hair before the scan and halo removal. We've been doing that every two days since it is so exhausting for her and requires something for dizziness.
This is the chair setup we use so she can lay back with her head over the tub. Before this she was laying over the bed with her head suspended over it and pouring water from a pitcher over her. It was OK but took quite a while and I had to refill the pitcher multiple times. This takes about five minutes with her on her back. Wet, lather, rinse!
This is how we thread a towel through the back of the halo in order to keep the vest dry. It is best to use a smaller towel or an older towel that is not too thick as the extra bulk makes it difficult to not get it soaked.
This is the adapter I fashioned from a quick disconnect. It allows me to get the hot water to the faucet and then connect the hand shower head without having to wait for the water to reach a stable temperature.
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